Today is our appointment for the Craniofacial Clinic. Last week I talked about how we prepped in advance for the clinic (question and note wise) and today I’m sharing how I prep a personal bag for Emma. Craniofacial Clinic is when Emma goes to see her team of doctors for her Cleft Lip and Palate. The Clinic meets in the…
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Cleft Lip/Palate
Prepping for Parent/Teacher Conferences & Cleft Team Appointment…
As you know Emma is in preschool, however, one of the things I love about her school is that she is basically treated like an elementary student versus a “preschool” student. Next week Darrick and I will be attending parent-teacher conferences, and unlike most parents I actually like meeting with her teacher and hearing about how Emma is doing this…
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Diary of Cleft A Mom: Covering All Our Bases {Why We Got Our Daughter tested for Autism}
At the end of last school year when I received our copy of Emma’s IEP to review before the IEP meeting, I read it and immediately started crying. After reading and rereading it I knew Darrick and I had to finally get Emma tested. The things we have noticed with Emma, weren’t due to her having a Cleft Lip and Palate….
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Diary of a Cleft Mom: Getting Attached {Prepping for Transition}
Coming into this cleft journey we (Darrick and I) relied heavily on the suggestions of the doctors and nurses. They gave us suggestions on who we should see for what, and even gave feedback from other parents. As time has passed we have learned to find different therapist or doctors based on Emma’s needs and learning type. We have been…
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Diary of a Cleft Mom: It Gets Better…
It Gets Better… I like to think of myself as a “seasoned” mom in the Cleft Community since my daughter is now 4 years old. I don’t know it all but I do feel like we have made it past some of our hardest times and there is light at the end of the tunnel. You see we are pass…
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Diary of a Cleft Mom: Take Pictures During Therapy
In talking to Emma’s Physical Therapist I decided that I would sign her up for outside Occupational Therapy {OT} also. There were a few things with her fine motor skills that I felt could use some fine tuning…she understands the concept but not how to place her fingers. She also gets Occupational Therapy at school, so it couldn’t hurt to…
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Hidden Stress of the Special Needs Parent…
Before becoming a blogger I read lots of blogs and online magazines, my love for them is what initially lead me to become a blogger. But sometimes reading blogs can be a blessing and a curse…some inspire and encourage you, then others write about their perfect lives that you start to second guess yourself and what you are doing in…
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Emma’s iPad Apps {Educational Apps for 2-5 Year Olds}…
I have talked a lot about our family being into technology. I know many wont agree, but we love it for our daughter. Emma has some speech delays, so working on her iPad has helped her tremendously! From helping her speech to helping with learning basic skills. We still work with her at home, but while she thinks she is…
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Diary of a Cleft Mom: Scheduling Surgery (Avoid Scheduling Conflicts)
This blog post is 100% my own opinion. I am sharing how we work with our doctors and surgeons. I fully understand that everyone’s hospital, doctor and surgeons do not work like this (and you should understand that too before reading)…I am from sharing from our own personal experiences. The reason for sharing is to help give you tips to…
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Diary of a Cleft Mom: Emma Updates
July is Cleft Awareness Month and as always I try to share a little information about my Cleft Cutie, Emma! I realized that I haven’t posted an update in quite some time so what better month to share it than this month! This year has been pretty good in terms of dealing with surgeries! Our last surgery was in April…
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